What coordinated care looks like
A multidisciplinary program should have clear referral criteria, appropriate diagnostic evaluation, family-centered decision-making, modality-specific expertise, safety monitoring, outcome measurement, emergency planning, and long-term follow-up.
Directory principles
If INFANCY develops a directory, inclusion criteria should be transparent and should not imply endorsement beyond the verified criteria. Listings should identify services, age ranges, modalities, conditions, location, referral process, and last verification date.
INFANCY cannot recommend an individual treatment or clinician. Families should discuss options with qualified professionals who understand the child’s full clinical context.
Help define center standards
Contribute clinical, operational, family, and quality-improvement expertise.